1) Welcome to all our new followers https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤗" title="Umarmendes Gesicht" aria-label="Emoji: Umarmendes Gesicht">
#LongCovidKids runs on goodwill and support, so thank you for being here. #gratitude
What does LCK do though? If you are new, you might be wondering, so we thought we would a tweet thread might help!
We started https://abs.twimg.com/emoji/v2/... draggable="false" alt="⬇️" title="Pfeil nach unten" aria-label="Emoji: Pfeil nach unten"> https://bit.ly/3pU0oju ">https://bit.ly/3pU0oju&q...
2) This brought lots of #longcovidkids families to our door, so we set up a place to connect & now support over 2000 families all facing the same challenges. Since December we have been welcoming about 100 families, often with multiple #longcovid kids.
https://www.facebook.com/groups/longcovidkids">https://www.facebook.com/groups/lo...
3) We realised #longcovidkids was different to #longcovid so we set up the #LongCovidKidsStudy with @PeopleWithApp to learn more & support researchers & Drs.
Download the app to get involved & select Long Covid Kids to be involved.
https://bit.ly/PeopleWithAndroid">https://bit.ly/PeopleWit... https://bit.ly/PeopleWithiOS ">https://bit.ly/PeopleWit...
PeopleWith

PeopleWith empowers and enables you to take control of your Health by putting you in the center. The PeopleWith App provides you with a platform to capture factual evidence to assist your Health Care...

https://bit.ly/PeopleWithAndroid
4) Hearing & experiencing the daily struggles of families experiencing disbelief, finding their #longcovidkids symptom concerns were minimised & ignored we started sharing members stories to raise awareness. @DailyMailUK were the 1st to help us. https://www.dailymail.co.uk/health/article-8900501/Its-not-just-adults-children-hit-long-term-Covid-too.html">https://www.dailymail.co.uk/health/ar...
It's not just adults, now children being hit by long-term Covid too

Toby and Josh Benson and Kitty McFarland are examples of children still suffering Covid symptoms months after first being infected.

https://www.dailymail.co.uk/health/article-8900501/Its-not-just-adults-children-hit-long-term-Covid-too.html
5) As LCK featured in multiple articles we have experienced an increase in trolls, doubters, and deniers, as well as enquiries. We now answer about 30 emails a day....yes, we are all volunteers.
So we set up a website to give more info on #longcovidkids https://www.longcovidkids.org/long-covid-kids-news">https://www.longcovidkids.org/long-covi...
LCK in the News | Long Covid Kids

See members of Long Covid Kids in the news, raising awareness & campaigning for recognition of Long Covid in children and support at a local level.

https://www.longcovidkids.org/long-covid-kids-news
6) It wasn& #39;t long before we started hearing from international groups and families with #longcovidkids. Now our website is translated into 10 languages & we have launched a campaign to highlight the effects of #Covid on kids. #LCKGlobal

https://www.longcovidkids.org/member-stories .">https://www.longcovidkids.org/member-st... .
Member Stories | Long Covid Kids

Long Covid Kids symptom signs from around the globe. Long Covid is the name for long-lasting symptoms of Coronavirus and can affect any child of any age. #LCKGlobal

https://www.longcovidkids.org/member-stories
7) Although we are often told that #longcovidkids is & #39;in our heads we know that isn& #39;t true. We know the truth that #Covid harms children is economically unpleasing but we won& #39;t let it get swept under the carpet. We will continue to ensure children have a voice in this pandemic.
7) Although we are often told that #longcovidkids is & #39;in our heads we know that isn& #39;t true. We know the truth that #Covid harms children is economically unpleasing but we won& #39;t let it get swept under the carpet. We will continue to ensure children have a voice in this pandemic.
7) Although we are often told that #longcovidkids is & #39;in our heads we know that isn& #39;t true. We know the truth that #Covid harms children is economically unpleasing but we won& #39;t let it get swept under the carpet. We will continue to ensure children have a voice in this pandemic.
7) Although we are often told that #longcovidkids is & #39;in our heads we know that isn& #39;t true. We know the truth that #Covid harms children is economically unpleasing but we won& #39;t let it get swept under the carpet. We will continue to ensure children have a voice in this pandemic.
7) Although we are often told that #longcovidkids is & #39;in our heads we know that isn& #39;t true. We know the truth that #Covid harms children is economically unpleasing but we won& #39;t let it get swept under the carpet. We will continue to ensure children have a voice in this pandemic.
8) So we advocate, to the best of our #LongCovid ability while caring for #longcovidkids; attending meetings, and giving presentations with/to @NHSEngland @fhcappg @WHO @ISARIC1 @ptsafetylearn @NEUnion @IHM_tweets @AHPLeader @GloPID_R , #teamwork

https://www.longcovidkids.org/our-team ">https://www.longcovidkids.org/our-team&...
9) Observing so many kids, we noticed & #39;trends/clusters& #39; so we launched our own survey. The 1st recorded #longcovidkids symptoms, the 2nd looked at specific clusters.
https://www.preprints.org/manuscript/202103.0271/v1">https://www.preprints.org/manuscrip...
10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Denkendes Gesicht" aria-label="Emoji: Denkendes Gesicht"> We are asking why?

We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported.
10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable= We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported." title="10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Denkendes Gesicht" aria-label="Emoji: Denkendes Gesicht"> We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported.">
10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable= We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported." title="10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Denkendes Gesicht" aria-label="Emoji: Denkendes Gesicht"> We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported.">
10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable= We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported." title="10) Interestingly many adult surveys are self-reporting, and yet for some reason, this seems to be an issue for #LongCovidKids https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Denkendes Gesicht" aria-label="Emoji: Denkendes Gesicht"> We are asking why? We report honestly on the @ONS & @GOVUK #COVID19 child figures & why they are likely to be under-reported.">
11) We are calling for a clear @govuk child-focused public awareness campaign to help families recognise #COVID19 symptoms, when & why to #testtoprotect
Why is the @CDCgov symptom list so much more comprehensive @MattHancock @JimBethell ? Can you update the @NHSuk list, please?
11) We are calling for a clear @govuk child-focused public awareness campaign to help families recognise #COVID19 symptoms, when & why to #testtoprotect Why is the @CDCgov symptom list so much more comprehensive @MattHancock @JimBethell ? Can you update the @NHSuk list, please?
11) We are calling for a clear @govuk child-focused public awareness campaign to help families recognise #COVID19 symptoms, when & why to #testtoprotect Why is the @CDCgov symptom list so much more comprehensive @MattHancock @JimBethell ? Can you update the @NHSuk list, please?
11) We are calling for a clear @govuk child-focused public awareness campaign to help families recognise #COVID19 symptoms, when & why to #testtoprotect Why is the @CDCgov symptom list so much more comprehensive @MattHancock @JimBethell ? Can you update the @NHSuk list, please?
11) We are calling for a clear @govuk child-focused public awareness campaign to help families recognise #COVID19 symptoms, when & why to #testtoprotect Why is the @CDCgov symptom list so much more comprehensive @MattHancock @JimBethell ? Can you update the @NHSuk list, please?
12) We work hard at #mythbusting, yes #LongCovidKids experience debilitating #fatigue, but they also experience #chestpain, #rashes, #jointpain, #swelling, #siezures #neuropsychiatric symptoms , #nausea, #insomnia, #covidtoe & more. #paediatric #research is vital.
13) More than anything we want to prevent more kids from sharing our story. We are calling for the @educationgovuk to put robust mitigation measures in schools.
Our awareness pack provides information to support informed decision making.
#LCKSchoolPack http://www.longcovidkids.org"> http://www.longcovidkids.org 
So there you go, that& #39;s us in a nutshell.
Oh & we run our SM, signpost families, collate research articles & network.

If you would like to support us please RT/donate/ask your followers to follow us and add #Longcovidkids or https://abs.twimg.com/emoji/v2/... draggable="false" alt="🧡" title="Orangefarbenes Herz" aria-label="Emoji: Orangefarbenes Herz"> to your profile. https://abs.twimg.com/emoji/v2/... draggable="false" alt="🙏🏼" title="Gefaltete Hände (mittelheller Hautton)" aria-label="Emoji: Gefaltete Hände (mittelheller Hautton)"> https://www.longcovidkids.org/donate ">https://www.longcovidkids.org/donate&qu...
Donate | Long Covid Kids

We care about the air kids breathe #LCKAirCare. Raising funds to provide schools with CO2 monitors to measure air quality in indoor spaces and reduce the risk of aerosol transmission of Covid & Long...

https://www.longcovidkids.org/donate
Not an easy watch, these images may be upsetting. They certainly are for the families living with them day in, day out.
#longcovidkids needs understanding, #BeKind. You may not want to believe it exists, but it does, and we hope can avoid it. #StaySafe #longcovidkids
You can follow @LongCovidKids.
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